I went to see my endo yesterday. I get to wean again, and again, and again. LOL! As long as I am tolerating it, I can go down fairly quickly. I'm going to end up cutting out my middle dose. I'll wean down to 25 mg. a day, and do more lab work and see where all of it is, and see if I need to keep going down.
He had me cut my Florinef in half, at least for now. I have slight swelling. My bp was back up, so we know it's time for a wean. The higher dose of hydro can be causing some of my swelling too. He told me to watch my bp to figure out if I need more hydro or not. If I get dizzy from sitting up, or standing, then I need to take more Florinef.
It was a good visit. I got to ask about some other Cushie friends. I asked if he would be willing to see them, and help them out. Of course, he said yes! He is just amazed at how doctors are not helping us! There are plenty of us out there who are willing to be diagnosed! We are willing to do the testing, even though it is such a pain! We just want to be better. Some doctors have made remarks to patients saying, "Why do you push for this? Why do you want this disease?" How stupid is that? Who wants a disease? It's not that we WANT Cushing's, we just want to get the proper diagnosis and get FIXED! That really shouldn't be that hard to understand! I guess it's just the fact that unless you live with it, and you know how it feels, you don't really understand! We are not a group of people who go looking for diseases to have. We are sick people who are looking for answers as to what we have! Big difference! I'm so thankful I have found a doctor on this side of the US to help me and others like me! They are too few and far between!
My husband commented last night that my skin has definitely changed. It's much softer now. My cousin keeps commenting that she can't believe how "pale" I am! LOL! She is so use to seeing my face always bright red, and now the redness is gone, or mostly gone. It started looking a bit red again in the past few days, since I need to wean again, but nothing like it did before! People have commented on my face slimming down too. I don't notice my heart any more. I use to always be aware of it beating, or skipping beats, fluttering, etc. Now, it's so calm, I don't even notice it. There are just little things like that, that nobody can see, that I notice, and things like that make me feel so much better!