Thursday, July 28, 2011

Guess I should update

Nothing exciting here, really. It's been 3 months since I updated, so I guess I should update a bit.

I have a new diagnosis. Maybe some others to come, but waiting on labs. I have Fibromyalgia. I've not been formally diagnosed with Chronic Fatigue, but I can tell you I have that as well. I've had them all my life, but, I also had Cushing's, and I think the high steroids helped treat them. For me, everything has cycled, all my life.

When I was a child, I fought to get my naps. My dad told me I would not be able to sleep when I started school. I said, "Too bad! I'll deal with that then. Right now, I'm taking a nap!" The story of my life is that I've always been tired. At times, I had more energy than others, but overall, I've been tired. I'm 40 now, so it's really wearing on me. I feel like I sleep my life away, and life is passing me by. I've tried Provigil, at 200 mg., and still I was tired, and slept a lot. Maybe my new doc, a Rheumatologist, will help me.

He's a super nice guy. He listens! Wow! I've met docs who just want to talk, and that is so annoying! So this doc diagnosed me with Fibro, and is checking to see if there is something else underlying. My body is diseased, that's all there is to it!

I have to say, I am depressed! I thought Cushing's was my only problem, and getting rid of that, I would feel great again. I did feel really good for the first 7 months. Then it all went downhill. Slowly but surely. I've gained all but 10 lbs. back, of the 60 I lost. I have Cushing's symptoms again, and I'm suppose to be cured. I don't know where all of that stands right now.

Now add in a new problem, the Fibro. Not new really, but I think it was in remission for a while, and is back, so now I'm dealnig with that. It hit bad in June. I felt like I had arthritis attack my whole body! My muscles hurt as well. I have a lot of muscle tension, and pains in my muscles. I was bedridden with it for 2 or 3 weeks through the worst of it. I decided this is for the birds! I'm so sick of being sick! So, I made the appt. with the Rheumy. I'd never been to one before.

He gave me Cymbalta to try first. Some say it's like a miracle drug. Not for me! One pill threw me into crisis mode. I was able to pull myself out of it after a few days, without going to the hospital. I don't know if I just reacted bad or if it lowers cortisol. I can't find much information regarding that. One body building site says it lowers cortisol by up to 40%! If that's true, that was my problem. Next drug please!

Lyrica is next on the list. I was scared to take it, because I didn't know how I would react. I didn't feel good yesterday, in general. My stomach was upset for most of the day. I took extra hydro before bed because I was nervous that the Lyrica might throw me into a low while sleeping. Wrong! I was wired until about 2:30 or 3 am. Finally the Lyrica kicked in! Wow! I slept really good. I woke up with very little pain. I'm suppose to take this 75 mg. for a week, then take it twice a day. I hope it controls the pain altogether. It would be nice to be pain free! I worry about it making me so tired though. I'm already tired. I don't need to be extra tired! We shall see how this works out!