Before I made that last post, I should have posted this, on our anniversary. I've just been too sick to care about anything.
My husband and I celebrated our 19th wedding anniversary on the 24th. Not so much celebrating though. I was sick! We did go away for the weekend. We went to Amish country for a couple of days. On Saturday, we walked around in 3 shops. Maybe 20 min. max for each place. It wore me out so bad! By that evening, when I would get up to walk, I could hardly move. I suppose that was the lead in, to the previous post.
Anyway, I really was not wanting to go anywhere this year. We usually try to get away for a day or two, for our anniversary. We have had so much medical expense, and since I'm facing more surgery, I didn't want to spend the money. He still wanted to go away, so we did. I just wish I had felt better to enjoy it more.
My husband is a great guy! I'm so blessed to have him for my husband! SO MANY of my friends who have/had Cushing's, go through a divorce. Of course, other people do too, but the sickness really wears you down and really works on a marriage.
I use to be like superwoman. I always had my house clean. It was always ready for visitors if anyone stopped in. He use to tease me and call me a neat freak. He doesn't get "neat freak" any more. Now it's more like "super slob". The kids help out, but they also make messes. I don't have the energy to stay on them to keep it up all of the time. When you have little kids, it's hard to keep the house neat. It has to be worked on ALL the time to keep it neat with little ones around. The older kids get upset because they clean it all up, and the little ones end up tearing it all out again.
After my pituitary surgery, when I got to feeling so good, I got this house really clean, and really organized again. He said he could tell I was doing so much better because the house was clean again, like I always use to have it. When the symptoms came back, and everything started going downhill, so did the house. He never complains about it, and I'm grateful! If it really bothers him, he will pitch in and help do stuff.
I think a lot of the spouses of Cushing's patients get so tired of the medical issues. I hear that a lot, that the spouses say they are tired of the drama. I try not to complain too much. I don't want to be a drag. However, I can't pretend I'm not sick. I physically and mentally don't have the strength to pretend I'm not sick. I did that for years. I'm beyond that now. It is what it is. I'm so thankful that my husband accepts that. I know when we got married, he never counted on going through all of this. Nobody ever does. A lot of people bail. He's stuck with me through it all. I'm hoping I'll be cured by my 20th anniversary, and then we can REALLY celebrate!
My husband is the love of my life. We dated for almost 2 years before we got married. We married at 19. Most people would never dream of getting married at 19 and expect it to last! We've had ups and downs, as anyone does, but we never fight, and we still love each other. That's saying a lot these days! Before I was married, I prayed and prayed for God to show me who he had intended for me. Some people don't believe in that, but we do. We felt that we were meant for each other. It's still working, 19 yrs. later. God helps us each day, to love each other, to make it through the bad times, and to trust in him. I'm so thankful that He gave me Andy!